Research ethics and public trust, preconditions for continued growth of internet mediated research: public confidence in internet mediate research

In this paper we argue for the position that responsible safeguards for privacy and ethical treatment of human data are of vital importance to retain the public confidence and trust that is necessary for the development and future success of internet mediated research (IMR). We support our position based on the high level of popular and media attention that is currently directed at IMR, which in combination with the relative uncertainties that still exist around the ethics of various IMR methods, raises the risk that IMR might succumb to a public backlash of similar proportions to the controversy that hit genetically modified (GM) crops in Europe. Based on the lessons that came out of the GM crops controversy we discuss the ethics requirements and challenges that must be met in order to retain the public trust in IMR. We end our argument by briefly reviewing a couple of examples of “privacy protecting architectures” that are being developed for IMR

Ethics of personalized information filtering

Online search engines, social media, news sites and retailers are all investing heavily in the development of ever more refined information filtering to optimally tune their services to the specific demands of their individual users and customers. In this position paper we examine the privacy consequences of user profile models that are used to achieve this information personalization, the lack of transparency concerning the filtering choices and the ways in which personalized services impact the user experience. Based on these considerations we argue that the Internet research community has a responsibility to increase its efforts to investigate the means and consequences of personalized information filtering

Accessing online data for youth mental health research: meeting the ethical challenges

This article addresses the general ethical issues of accessing online personal data for research purposes. The authors discuss the practical aspects of online research with a specific case study that illustrates the ethical challenges encountered when accessing data from Kooth, an online youth web-counselling service. This paper firstly highlights the relevance of a process-based approach to ethics (Markham and Buchanan, 2012) when accessing highly sensitive data and then discusses the ethical considerations and potential challenges regarding the accessing of public data from Digital Mental Health (DMH) services. It presents solutions that aim to protect young DMH service users as well as the DMH providers and researchers mining such data. Special consideration is given to service users’ expectations of what their data might be used for, as well as their perceptions of whether the data they post is public, private or open. We provide recommendations for planning and designing online research in an ethical manner that includes vulnerable young people as research participants. We emphasise the distinction between public, private and open data, which is crucial to comprehend the ethical challenges in accessing DMH data. Among our key recommendations, we foreground the need to consider a collaborative approach with the DMH providers while respecting service users’ control over personal data, and we propose the implementation of digital solutions embedded within the platform for explicit opt-out/opt-in recruitment strategies and ‘read more’ options (Bergin and Harding, 2016)

Privacy concerns arising from internet service personalization filters

Personal service customization, or personalization, is one of the core tools that are being used by on-line providers of information services such as search engines, social media, news sites and product recommender systems to optimize the individual user experience in hopes of attracting and keeping users. In this paper we will examine the user profile models that are used to achieve this information personalization. From a citizen centric perspective, our concerns focus on the degree of privacy intrusion that is implicitly required to determine the parameter settings of the information filter profile and the ethical implications of the personal behavior predicting properties of the user model itself

Understanding academic attitudes towards the ethical challenges posed by social media research

In this paper, we outline an online survey-based study seeking to understand academic attitudes towards social media research ethics (SMRE). As the exploratory phase of a wider research project, findings are discussed in relation to the responses of 30 participants, spanning multiple faculties and locations at one international university. The paper presents an empirical measure of attitudes towards social media research ethics, reflecting core issues outlined throughout the nascent Internet-mediated research (IMR) literature, in addition to survey questions relating to familiarity with SMRE guidance, and experience of reviewing SMRE proposals from students and/or as part of the university's research ethics committees (RECs). Findings indicate notable variance in academic attitudes towards the ethical challenges of social media research, reflecting the complexity of decision-making within this context and further emphasising the need to understand influencing factors. Future directions are discussed in relation to the tentative findings presented by the current study

Ethics of Personalized Information Filtering

Online search engines, social media, news sites and retailers are all investing heavily in the development of ever more refined information filtering to optimally tune their services to the specific demands of their individual users and customers. In this position paper we examine the privacy consequences of user profile models that are used to achieve this information personalization, the lack of transparency concerning the filtering choices and the ways in which personalized services impact the user experience. Based on these considerations we argue that the Internet research community has a responsibility to increase its efforts to investigate the means and consequences of personalized information filtering

Juries: acting out digital dilemmas to promote digital reflections

A quick journey through prevention science (e.g., substance misuse prevention) and a comparison between online and offline risks, harm, and vulnerability in children suggests that new approaches and interventions are needed to promote Internet safety and minimise the new sources of risk associated with accessing the Internet. In this paper we present a new methodological approach to promote digital literacy and positively influence the way in which young people interact with the Internet: iRights Youth Juries. These juries offer a solution for the challenge of how to engage children and young people in activities that, rather than simply promoting Internet safety, aim to provide the knowledge and the confidence required for developing healthy digital citizens. This approach thus begins to move beyond the notion of the Internet as a simple cause of social change, approaching it instead as an opportunity to engage knowledgeably with the digital world and maximise citizenship